Update

Well, the results are in from my PET scan on Tuesday and although we were hoping to have very clear answers to how much longer I would have treatment and exactly what that would entail - we are still really in a "wait and see" mode.

It was determined today that I would have 2 more treatments - which I expected. As to where we go from there is still up in the air. There is a good chance that I will have to have 2 more treatments after that and then 3 weeks of radiation. In fact, that is pretty much what I suspect will happen but it is really how I end up responding to treatment.

They did find a spot on my lung that is leaving everyone a bit confused. It was not there during my first scan and they don't really know what it is from. The only thing that I heard consistently from all three doctors that I talked to today was that it wouldn't make any sense for it to be cancer. But they still really need to figure out what it is so we can proceed as one of the chemo drugs that I am on can cause some damage of the lungs as one of its side effects.

So, I guess here is what is going on in simpler forms:

1.) The cancer is no longer active but it is still there. So, even though it isn't growing anymore - we still need to get rid of what remains.

2.) We are uncertain on how many treatments total but it will be at least 2 more.

3.) We are uncertain on whether or not I will need radiation but if I do - it will most likely be 3 weeks worth (5 days a week). This will also have to happen on all 3 spots that I have the cancer (neck, chest, and arm pit) which was actually a surprise to me. I thought it would only be my worst spot - my neck.


How am I feeling? I guess a bit discouraged. I do wish that I knew exactly what I was up against. That way I can mentally prepare for what I need to do. But that is something I always struggle with. I always want to see the big picture - know what is around every turn - that way I can always be prepared and won't have any surprises. Instead, I just to take it one day at a time. Enjoy my good days as much as I can, get through my bad days the best that I can, and leave the rest up to God.