Updates - Scan and Overall

Scan Update

Sorry for the delay in updating all of you. After my appointment this a.m. I grabbed lunch and by the time I got home with my kids I was absolutely exhausted so I attempted to rest a bit between adhering to the needs of a 6, 4, and 21 month old. Anyway, I feel like I somewhat got my second wind for the day. (This is a long day for us as Jason doesn't get home from work until late tonight.)

Anyway, the doc appointment went well. The spot in my chest that they are watching is smaller but not gone. Ultimately they would like to see it go away completely so I will definitely be praying that it does.  I got some of the details of my future care ironed out for the most part - what type of testing I will need and when. These are just general guidelines of course, it will ultimately depend on how I do.

Overall Update

Overall I am doing pretty well I think. On my good days I feel like I am operating on about 50% of my optimal energy level. When I have a bad day it feels like I go back down to the 10-15% range and that is pretty rough.

I am now 4 months past treatment and they say that it will take at least 6 more months to feel "back to normal" again. I find that having patience to allow my body to recover is one of my biggest struggles. I just want to feel better already!

Another hard part, as I have said before, is that my outsides don't match my insides. I can feel really bad on the inside but people just see that I look so much better than I did during treatment, so they think I am all better. (Really, it is not hard to look better when you looked like you were dying before.)

It takes a lot of honesty on my part to admit that I am not "super-woman" and that I am still struggling. My first instinct is to say, "Oh no, I am fine. Yep, feel great! Want to see me do a back-flip?" Then wind up in bed for 3 days because of that back-flip. :-)

It is also funny because I can now really see this in other people who are hurting or going through treatment as well. I can see that they really don't feel good at all - even though they are putting on a brave face and it has made me much more sympathetic to those situations.

Anyway, enough rambling. Thank you all for the prayers! Love you all!

Oh, I almost forgot (and I really did almost forget silly me after making such a big deal about this...)

I do get my port out! 

I don't have a date yet but I will definitely let you know. And then I think a "PORT PARTY" is in order.... Anyone want to help me plan it???

Blessings, 
Andrea