So, we were so overjoyed at the news that I am now a "cancer survivor" that I realized I never did a complete update on my situation. I know there are some of you who are wanting to know what is going on exactly so here it is...
As far as the PET scan is concerned I am at what they call a "complete response" - which meas that there is not any cancer being detected.
I do, however, have a spot in my chest. Evidently it is an enlarged lymph node and I guess this is common for the type of Hodgkin's Lymphoma that I had. So, they will basically just watch this spot until it goes away or if it doesn't go away I guess they will just keep watching it for the rest of my life.
I have my next CT scan on 2/20 and then meet with my oncologist a week or so after that. If I get a clear scan then, my oncologist will let me get my port out. That will be a happy day because this thing honestly drives me crazy.
From there I will see my oncologist every 3 month with a scan every 6 months. Once I hit the 2 year mark my risk for the HL to come back goes down significantly. When I hit 5 years it goes down even more. In 8 years they will start watching me closely for breast cancer as my risk for that is up due to the radiation.
So, if you would like to continue to pray for me I would of course appreciate that. Please pray that my scans continue to be clear and that the spot in my chest just goes away so we don't have to worry about that.
Anyway, that is the situation for now. It really does feel so good to know that I won't have to have anymore treatment. I really don't know what to do with myself right now but I am sure I will figure something out. As of now, I am just trying to give myself the rest that I need. They say that it takes just as long to recover as it did to go through treatment so I am looking at another 8 months or so in order to get back to normal.
Thanks again for all of the prayers and other support so many of you have offered over this past year. We couldn't have done this without you and, of course, without God. For He receives all of the glory for giving me the strength and will to get to this point and for placing so many wonderful people in my life to help us in our time of need. I am truly grateful for each and every second HE has given me. They are a precious gift.
Blessings and Love,
Andrea
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Showing posts with label PET Scan. Show all posts
Showing posts with label PET Scan. Show all posts
Monday, January 9, 2012
Wednesday, December 14, 2011
14 Days & 21 Days From Today.... {Prayer Request}
I have enjoyed the last 6 weeks tremendously. Really, there are no words to describe my enjoyment. I have only had one doctor's appointment in that time and no treatments of any kind. It has been spectacular.
For the month of November I did very little. I basically hung out with my kids and my hubby as much as possible and just really enjoyed the normalcy of life again. I cleaned a lot too. Oh, and cooked. I really like cooking. I also had to established a "new normal" which I will talk about in a later post.
But today, it hit me.... my next PET scan is 14 days from today and then 7 days after that I will get the results. I started feeling those butterflies in my stomach. I started having that feeling of uncertainty in my heart. The "what if's" start creeping in my mind. And yes, since I am being truly honest here... even fear.
The fear of the cancer not really being gone. The fear of having to go back into treatment again - can I really endure any more? The fear, the fear, the fear.
I have heard from a few different people that fear means False Evidence Appearing Real. Well, 99% of the time I agree with that statement but when you are dealing with something like cancer I think it becomes different. Or at least it is different for me right now where I am at.
You see, I haven't received that clean slate yet. I haven't been given the good news that I am all clear. We are still in the "hoping" stage. I have also been down this road before. In August after I had finished all of my chemo and went in for my scan.... they fully anticipated me being clear then.... but I wasn't. Again, they are fully anticipating me being clear now... but...that is when the "what if's" creep in.
I struggle greatly with staying grounded enough to face reality. My reality. The reality of my situation. But also clinging to the hope and even allowing myself to dream a bit. To dream of the elation I will feel when I hear those words... the cancer is gone. It. Is. Finished. Do I dare let myself dream? Do I dare let my mind hope such a big hope. Yes, I believe all things are possible. I have faith that God can heal me if that is his plan. But it seems so much harder to pick yourself up off the floor when you have let yourself dream so big - doesn't it? But by guarding my heart am I having true faith?
But... that is also where God meets me and is meeting me this very moment as I write this. The fact remains that even if I don't get the news that I want he will still be right here with me. The fact remains that if I do have to go in for more treatment... I'm going to do it. I have too many reasons to keep pressing on. The fact remains that he will give me the strength I need when I need it.
I remember having a conversation with another lady who had been battling cancer for many years - her boys are young too. And she made the comment that we won't ever give up because we are moms. Even if we are getting sick non-stop (okay, so she said puking - let's not sugar coat things here) that we would press on for our kids. She is right. I will press in whatever my reality will be in 21 days. But until then - I will continue to hope and maybe even allow myself to dream a bit.
God bless you all in this wonderful season. If you wouldn't mind saying an extra prayer or two over the next few weeks for me and, of course, my family I would greatly appreciate it.
Blessings and Love,
Andrea
For the month of November I did very little. I basically hung out with my kids and my hubby as much as possible and just really enjoyed the normalcy of life again. I cleaned a lot too. Oh, and cooked. I really like cooking. I also had to established a "new normal" which I will talk about in a later post.
But today, it hit me.... my next PET scan is 14 days from today and then 7 days after that I will get the results. I started feeling those butterflies in my stomach. I started having that feeling of uncertainty in my heart. The "what if's" start creeping in my mind. And yes, since I am being truly honest here... even fear.
The fear of the cancer not really being gone. The fear of having to go back into treatment again - can I really endure any more? The fear, the fear, the fear.
I have heard from a few different people that fear means False Evidence Appearing Real. Well, 99% of the time I agree with that statement but when you are dealing with something like cancer I think it becomes different. Or at least it is different for me right now where I am at.
You see, I haven't received that clean slate yet. I haven't been given the good news that I am all clear. We are still in the "hoping" stage. I have also been down this road before. In August after I had finished all of my chemo and went in for my scan.... they fully anticipated me being clear then.... but I wasn't. Again, they are fully anticipating me being clear now... but...that is when the "what if's" creep in.
I struggle greatly with staying grounded enough to face reality. My reality. The reality of my situation. But also clinging to the hope and even allowing myself to dream a bit. To dream of the elation I will feel when I hear those words... the cancer is gone. It. Is. Finished. Do I dare let myself dream? Do I dare let my mind hope such a big hope. Yes, I believe all things are possible. I have faith that God can heal me if that is his plan. But it seems so much harder to pick yourself up off the floor when you have let yourself dream so big - doesn't it? But by guarding my heart am I having true faith?
But... that is also where God meets me and is meeting me this very moment as I write this. The fact remains that even if I don't get the news that I want he will still be right here with me. The fact remains that if I do have to go in for more treatment... I'm going to do it. I have too many reasons to keep pressing on. The fact remains that he will give me the strength I need when I need it.
I remember having a conversation with another lady who had been battling cancer for many years - her boys are young too. And she made the comment that we won't ever give up because we are moms. Even if we are getting sick non-stop (okay, so she said puking - let's not sugar coat things here) that we would press on for our kids. She is right. I will press in whatever my reality will be in 21 days. But until then - I will continue to hope and maybe even allow myself to dream a bit.
God bless you all in this wonderful season. If you wouldn't mind saying an extra prayer or two over the next few weeks for me and, of course, my family I would greatly appreciate it.
Blessings and Love,
Andrea
Saturday, November 26, 2011
What's Next with the Cancer Treatment Plan
I have been getting the question...."What's next?" quite a lot lately. I realized that I had not given a "formal" update on what the next steps are for me and my cancer treatment. So here you go...
They do not do any type of testing of any kind for a minimum of two months after radiation. Evidently they need to make sure that all of the swelling and stuff has gone away or that can make the results come back wonky. (Yes, wonky is a technical term - at least in my world.)
So, my scan is scheduled for December 28th and they will be doing a PET scan then. I then have my doctors' appointments on January 4th where I will meet with both my chemo and radiation oncologists. That is when we are hopeful (and when I say hopeful I really mean HOPEFUL) that I will get a clear report.
If I get a clear report I will then see my main oncologist every 3 months with a scan every 6 months. They will gradually move my check-ups further and further apart as I get clear resutls. If I can hit the 2 year mark without it coming back then my risk factor goes way down - at least for the Hodgkin's. If I can hit 5 years without it coming back then it goes way, way, way down!
If for some unforeseen reason my scan does not come back clear on the 4th of January - I have no idea what will happen. They really don't discuss those types of things with you in advance. Really, there is no point because you would then just worry about it and you don't need that.
How am I doing with it all? FANTASTIC! I am so ecstatic to be done with treatment right now - life truly could not be any better. I am just adoring all of this time that I have with my family and I am soaking up every second of it. I just feel truly blessed.
Some have asked how I am doing with the wait for my results and honestly I don't even think about it. It is what it is and there isn't anything I can do about it - so why worry about it?
I think when you go through stuff like this you just get so use to all of the testing and waiting that you don't pay that much attention to it anymore. You enjoy the times that you aren't in a doctors office or aren't being tested for something so much and you realize that is what is important. It seems pointless to take these precious minutes of life that I have been given and spend them worrying. Life is too short for that.
So, there you have it. I won't find out anything until January 4th. We are praying that God will bless us with a clean bill of health in 2012! (All prayers are welcome!)
Blessings and Love to All!
Andrea
They do not do any type of testing of any kind for a minimum of two months after radiation. Evidently they need to make sure that all of the swelling and stuff has gone away or that can make the results come back wonky. (Yes, wonky is a technical term - at least in my world.)
So, my scan is scheduled for December 28th and they will be doing a PET scan then. I then have my doctors' appointments on January 4th where I will meet with both my chemo and radiation oncologists. That is when we are hopeful (and when I say hopeful I really mean HOPEFUL) that I will get a clear report.
If I get a clear report I will then see my main oncologist every 3 months with a scan every 6 months. They will gradually move my check-ups further and further apart as I get clear resutls. If I can hit the 2 year mark without it coming back then my risk factor goes way down - at least for the Hodgkin's. If I can hit 5 years without it coming back then it goes way, way, way down!
If for some unforeseen reason my scan does not come back clear on the 4th of January - I have no idea what will happen. They really don't discuss those types of things with you in advance. Really, there is no point because you would then just worry about it and you don't need that.
How am I doing with it all? FANTASTIC! I am so ecstatic to be done with treatment right now - life truly could not be any better. I am just adoring all of this time that I have with my family and I am soaking up every second of it. I just feel truly blessed.
Some have asked how I am doing with the wait for my results and honestly I don't even think about it. It is what it is and there isn't anything I can do about it - so why worry about it?
I think when you go through stuff like this you just get so use to all of the testing and waiting that you don't pay that much attention to it anymore. You enjoy the times that you aren't in a doctors office or aren't being tested for something so much and you realize that is what is important. It seems pointless to take these precious minutes of life that I have been given and spend them worrying. Life is too short for that.
So, there you have it. I won't find out anything until January 4th. We are praying that God will bless us with a clean bill of health in 2012! (All prayers are welcome!)
Blessings and Love to All!
Andrea
Thursday, August 25, 2011
Update....
Well, we met with the doctors today and we still really don't have all of the answers - plus it is just kind of difficult to explain but I will do my best because if I don't I think there are a large majority of you who are going to show up at my house tomorrow and demand an explanation anyway... so here it goes.
Way back when, February 4, 2011 to be exact (seems like a lifetime ago) when I had my first PET Scan my SUV level was a 25. And no, I am not referring to my vehicle rating (is there even such a thing?) Anyway....unless you have been through the cancer scene yourself or are in the medical field this probably means nothing to you so I thought I would provide a little explanation of what it does mean....
You are probably aware that cancerous cells multiply at a faster rate than normal cells making them more active - and of course more dangerous because they like to take over all the good stuff. Anyway, when I go for a PET scan it shows what the cells activity rate is and it measures the value in SUV's or standardized uptake value (just in case you were interested). So the PET scan will determine the SUV of one spot in comparison to everywhere else in the body. The baseline for a person without cancer is usually a 1 (one) and they start to worry if a person is between 3 to 5 - remember, mine was a 25 which was not good - obviously - hence the chemo thing for the past 6 months, etc. etc.
So, here is where the tricky part comes in. In my last PET scan (last Thursday) it was determined that I have a spot in my neck that is still showing a reading of 3.3 SUV's. It is wonderfully amazing that I have gone from a 25 all the way down to a 3.3 but it still puts me in that area of "concern". They can't really tell me if it is still the cancer or not and they don't think it can be ignored. I know... it is a bummer.
Basically we have options coming out of our ears. Some of them are not good options - like the one I have to sell all of my worldly belongings and live out my days on a beach somewhere - but nonetheless, they are still options and now it is time for Jason and I to really seek the Lord and find out what His will is for us at this time.
The first thing that they want to do is take a biopsy of the lymph node that is causing the issue here. This would be a surgical procedure and they would take the whole lymph node for examination. The one thing that may prevent this from happening is the location of the lymph node that needs to be biopsied. There are all kinds of arteries, tendons, etc. that I am really pretty attached to and would like to keep in one piece for obvious reasons. I will meet with the surgeon next week to see if the biopsy is even a possibility and if it is - well that will be the first of many decisions we have to make.
We are praying for large neon lit, billboard sized signs from God right now. I think the hardest thing is really just praying through every option and listening for God's voice to say, "Yep, that is the one!" But we are being very diligent through this process and know that God will do his thing when he is ready.
As for how I am doing with all of this? I am actually doing well. I had a peace going into this and I have that same peace now. It is so hard to explain but I just know God is going to heal me. I feel like I have already faced the lion on this one - 7 tumors in my neck, cancer in 3 different places in my body - so one little spot in my neck in the scope of life is just that.... one little spot. Yes, it needs to be addressed and we will walk it out as God calls us to but I do feel like I have faced a lot worse. Hopefully that makes sense.
So, that is the update for now... Thanks so much for all of the prayers!
Blessings and Love!
Andrea
Way back when, February 4, 2011 to be exact (seems like a lifetime ago) when I had my first PET Scan my SUV level was a 25. And no, I am not referring to my vehicle rating (is there even such a thing?) Anyway....unless you have been through the cancer scene yourself or are in the medical field this probably means nothing to you so I thought I would provide a little explanation of what it does mean....
You are probably aware that cancerous cells multiply at a faster rate than normal cells making them more active - and of course more dangerous because they like to take over all the good stuff. Anyway, when I go for a PET scan it shows what the cells activity rate is and it measures the value in SUV's or standardized uptake value (just in case you were interested). So the PET scan will determine the SUV of one spot in comparison to everywhere else in the body. The baseline for a person without cancer is usually a 1 (one) and they start to worry if a person is between 3 to 5 - remember, mine was a 25 which was not good - obviously - hence the chemo thing for the past 6 months, etc. etc.
So, here is where the tricky part comes in. In my last PET scan (last Thursday) it was determined that I have a spot in my neck that is still showing a reading of 3.3 SUV's. It is wonderfully amazing that I have gone from a 25 all the way down to a 3.3 but it still puts me in that area of "concern". They can't really tell me if it is still the cancer or not and they don't think it can be ignored. I know... it is a bummer.
Basically we have options coming out of our ears. Some of them are not good options - like the one I have to sell all of my worldly belongings and live out my days on a beach somewhere - but nonetheless, they are still options and now it is time for Jason and I to really seek the Lord and find out what His will is for us at this time.
The first thing that they want to do is take a biopsy of the lymph node that is causing the issue here. This would be a surgical procedure and they would take the whole lymph node for examination. The one thing that may prevent this from happening is the location of the lymph node that needs to be biopsied. There are all kinds of arteries, tendons, etc. that I am really pretty attached to and would like to keep in one piece for obvious reasons. I will meet with the surgeon next week to see if the biopsy is even a possibility and if it is - well that will be the first of many decisions we have to make.
We are praying for large neon lit, billboard sized signs from God right now. I think the hardest thing is really just praying through every option and listening for God's voice to say, "Yep, that is the one!" But we are being very diligent through this process and know that God will do his thing when he is ready.
As for how I am doing with all of this? I am actually doing well. I had a peace going into this and I have that same peace now. It is so hard to explain but I just know God is going to heal me. I feel like I have already faced the lion on this one - 7 tumors in my neck, cancer in 3 different places in my body - so one little spot in my neck in the scope of life is just that.... one little spot. Yes, it needs to be addressed and we will walk it out as God calls us to but I do feel like I have faced a lot worse. Hopefully that makes sense.
So, that is the update for now... Thanks so much for all of the prayers!
Blessings and Love!
Andrea
Tuesday, March 29, 2011
Waiting & Praying
I know I am dreadfully behind on my blogging. All I can say is "sorry" to you all who look forward to reading it each day. My mind and my heart have been elsewhere for a while - not because I didn't want to be here but I just couldn't be here.
I couldn't figure out why I didn't want to write anything over the past week or so. At first I just chalked it up to the fact that I had a couple of rough treatments and I was just beyond exhausted. But it wasn't until today that I realized the real reason why. It was because I felt like my cancer was now running my life.
Each of my days are defined by how the cancer is making me feel. They are defined by treatments and medications, doctors appointments - they are defined by the dread of what comes next. This is not what life should be defined by. It should only be defined by God and God alone.
I feel like I have done my very best to see God's wisdom in it all, to trust Him, and to feel His peace. But suddenly all the lines became blurred. I started to feel like the "cancer" had taken over my life and I didn't like it at all. I don't like being sick and tired all of the time. I don't like that my husband and my kids don't like it - I think that is the worst part. I know they are so tired of this and they want their wife and mom back.
I know that things can never go back to the way they were before - I don't want them too. I have learned to much, I have gone too far to just suddenly wish it all away. But I do desire the simple things. I have said before that I don't ever feel I have taken my children for granted - Jason and I have lost too much to ever let that happen. But I did take for granted my role in their lives. This is something I will never do again.
I just had to get away from it for a little while. (At least in my mind.) I had to focus on some other things. Fortunately God has provided me with some great research opportunities that have allowed me to focus on something besides the cancer. And through that reprieve that God provided I was able to refocus on what I really needed to be focused on all along - God.
Today I had my PET Scan. The stuff they gave me knocked me down a bit which is really unfortunate because this is suppose to be my "good week" but I am glad we are to this stage of the game. Now we are just waiting and praying for the results. I am praying that the cancer is gone and that I am in remission. I am praying that I don't need that many more treatments. I would like it to be no more treatments to be really honest with you but I am preparing myself in case that is not my reality. I remind myself that the doctor said originally that I would have to go through 8-12 treatments. I mentally prepared myself for 12 treatments at that time. Anything less than 12 is a miracle.
Blessing to you all,
~Andrea
I couldn't figure out why I didn't want to write anything over the past week or so. At first I just chalked it up to the fact that I had a couple of rough treatments and I was just beyond exhausted. But it wasn't until today that I realized the real reason why. It was because I felt like my cancer was now running my life.
Each of my days are defined by how the cancer is making me feel. They are defined by treatments and medications, doctors appointments - they are defined by the dread of what comes next. This is not what life should be defined by. It should only be defined by God and God alone.
I feel like I have done my very best to see God's wisdom in it all, to trust Him, and to feel His peace. But suddenly all the lines became blurred. I started to feel like the "cancer" had taken over my life and I didn't like it at all. I don't like being sick and tired all of the time. I don't like that my husband and my kids don't like it - I think that is the worst part. I know they are so tired of this and they want their wife and mom back.
I know that things can never go back to the way they were before - I don't want them too. I have learned to much, I have gone too far to just suddenly wish it all away. But I do desire the simple things. I have said before that I don't ever feel I have taken my children for granted - Jason and I have lost too much to ever let that happen. But I did take for granted my role in their lives. This is something I will never do again.
I just had to get away from it for a little while. (At least in my mind.) I had to focus on some other things. Fortunately God has provided me with some great research opportunities that have allowed me to focus on something besides the cancer. And through that reprieve that God provided I was able to refocus on what I really needed to be focused on all along - God.
Today I had my PET Scan. The stuff they gave me knocked me down a bit which is really unfortunate because this is suppose to be my "good week" but I am glad we are to this stage of the game. Now we are just waiting and praying for the results. I am praying that the cancer is gone and that I am in remission. I am praying that I don't need that many more treatments. I would like it to be no more treatments to be really honest with you but I am preparing myself in case that is not my reality. I remind myself that the doctor said originally that I would have to go through 8-12 treatments. I mentally prepared myself for 12 treatments at that time. Anything less than 12 is a miracle.
Blessing to you all,
~Andrea
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